f.a.q. about pws and coqlife

1.Why is CoQLife important for my child with PWS?

CoQLIFE is a superior CoQ10 supplement which Dr. Judy designed to meet the CoQ10 needs of children with PWS.  PWS is a genetic developmental disability and low energy syndrome. It keeps the body’s cells from being able to manufacture, CoQ10, or the fuel child’s body needs to function properly. This happens at the body’s most fundamental level, within the cell itself.  Just as our bodies have organs that perform specific functions, a cell has organelles, or “little organs”, that do the same.  One of these organelles, the mitochondria, is responsible for synthesizing CoQ10. Since children with PWS cannot make there own CoQ10, their bodies do not have the ability to produce the energy necessary to function at a fundamental level. This causes severe developmental delays. Proper CoQ10 supplementation is critical for bridging the CoQ10 deficit that PWS creates, so that your child can thrive.

2.How can  CoQLife help manage PWS symptoms?

CoQLife will give your child the CoQ10 he or she needs.  This helps to mange many of the symptoms associated with PWS including: lethargy, excessive sleeping, irritability, obsessive-compulsive behavior, weight gain, food seeking or foraging. 

3.Aren’t all CoQ10 products essentially the same?

No! CoQ10 products vary greatly in quality and effectiveness. A CoQ10 that is a compressed powder tablet or capsule has very poor absorption and bioavailability because the temperature of the human body is not high enough to break down CoQ10 crystals into the smaller molecules necessary for absorption and use by the body’s cells. Even other liquid soft gel products are inferior to CoQLife because they are not formulated to keep the CoQ10 molecules from recrystallizing at room temperature and they do not have a carrier molecule to assist in absorption in the small intestine and then to the lymphatics. 

4.My PWS specialist/doctor recommends my child take a CoQ10 supplement (Brand X).  Why should I give my child CoQLife instead of store brands or other name brand CoQ10.

CoQLife is liquid soft gel specially formulated so that crystals are broken down into absorbable molecules that do not recrystalize so that they can be absorbed in the bloodstream and enter the body’s cells to produce energy.  Many other CoQ10 products have CoQ10 molecules that are in crystalline forms that are too large to be absorbed.  These large crystals stay in the intestines and are eliminated with the body’s waste.  Many of these products have a 1-3% absorption rate, where as CoQLife has a nearly 12% absorption rate.
Also, many other CoQ10 products contain other ingredients that while good in themselves when paired with CoQ10 actually inhibit the absorption of CoQ10 making in virtually ineffective.  For example, fish oil is an important omega-3 and is good for the body.  However, when it is paired with CoQ10 its molecules keep CoQ10 molecules from effectively entering the blood stream. If you have been advised to give your child a fish oil supplement, Dr. Judy recommends taking it 6-8 hours after taking CoQLife.

5.What dosage is appropriate for my child?

Dr. Judy’s recommendations consider your child’s age, height and weight as well as current growth hormone treatments. Other factors include energy level. Does the child sleep excessively? Does he/she tire easily? Is the child meeting developmental milestones such as rolling over, sitting up? Does he or she forage for food?
While every child’s needs should be examined on a case by case basis, Dr. Judy has found that children’s CoQ10 needs increase with age. Please, contact Dr. William Judy directly at sibrinc@cs.com to discuss your child’s specific situation.

6.How long does it take for CoQLife to “start working?

It depends on the level of CoQ10 deficiency in the blood stream. You may see improvement in your child’s energy level-less napping, decreased food foraging, decrease irritability-within as few 7-10 days. However, it may take longer.

7.Does my child’s dosage needs change as he/she gets older? 

Yes.  Just as children need more food as they get older, they need more CoQ10 as well.

8.My child has been taking CoQLife for quite some time, but now it doesn’t seem as effective as it once was.  Why is this and what should I do?

This is because your child is growing and his/her body requires more energy than before to function and,therefore, needs more CoQLife.  Parents tell us from time to time that they have stopped giving CoQLife to their child because it doesn’t work anymore. It is not that it doesn’t work; it’s that the current dose is insufficient to meet the child’s needs. You would not feed a five year old the same amount of food you would give an infant, so why give him or her the same amount of CoQLife. 
Dr. Judy recommends increasing the dose by one to two soft gels for 10 days.  If you see improvement, continue with the new dose.  If there is still no improvement consult your PWS specialist.  Dr. Judy is always willing to consult with you and your specialist.

9.Can too much CoQLife harm my child?

No. Whatever is not absorbed in the blood stream will pass through the intestines and be eliminated with the body’s waste.

10.What time of day should I give my child CoQLife? 

It is best to give CoQLife to your child at breakfast.  CoQLife should always be taken with food, because this is important for proper digestion and absorption.  Again, because CoQLife will improve your child’s energy level, it is best to give it at breakfast.  We do not advise taking CoQLife at night because this may interfere with your child’s ability to sleep.

11.My child cannot swallow pills. How do I give him or her CoQLife?

CoQLife is a liquid soft gel that you can puncture and squeeze into a spoon, baby formula or soft food such as apple sauce or yogurt.  Even if your child can swallow pills, it may be beneficial to administer the CoQLife in soft food or by squeezing it onto a spoon. Some parents have reported that doing so “seems to work better.”
For children using a G-Tube, chase the CoQLife with formula or water to keep it from sticking to the inside of the tube.  Never give CoQLife by mouth to children or adults on a G-Tube. 

12.My child is just a few weeks old. Is CoQLife appropriate now? 

It may be. Consult with your physician/PWS specialist before beginning CoQ10 supplementation. Children as young as three days old have taken 25 mg (1/2 a softgel) of CoQLife.

13.Will my child need CoQLife for the rest of his/her life?

Prader-Willi Syndrome is a developmental disability for which there is no cure.  Daily CoQ10 supplementation is vital for symptom management as well as healthy growth and development.  Your child’s CoQ10 needs will change throughout his or her life.  He or she will need CoQ10 supplementation throughout his/her lifetime in order to maintain the CoQ10 levels in the blood that are necessary for the body’s systems i.e. digestive, circulatory, neurological to function properly.  As insulin  manages the symptoms of diabetes and is not a cure for diabetes and must be taken lifelong, the same is true for CoQ10. It manages the symptoms of PWS is and not a cure for PWS and thus will be required throughout life.

14.I want to get my child started on CoQLife. Who do I contact?

Call Cyto-Med at 1-866-751-2872 a client services representative will be glad to assist you.  

15.Does Cyto-Med offer a discount for PWS?

Yes! Before placing your first order, call 1-866-71-2872. Cyto-Med offers a significant discount for PWS.  The discount is not listed on the website. You must call to register as a PWS client in order to receive the discount.

Frequently Asked Questions About CoQLife and How It May Help Children and Adults with Prader–Willi Syndrome (PWS)